Facing
a panel of US senators, 10-year-old Tessa Wick made it plain. "Is the
life of one child less important than a cell the size of a dot?" she asked.
Her plea to fund stem cell research to find a cure for juvenile
diabetes, the disease from which she suffers, was direct and short.
Two hundred other children and a handful of celebrities joined Wick Tuesday
morning at a hearing on juvenile, or Type 1, diabetes. The requests - whether
coming from unknown children or well-known adults - was the same: Dedicate more
money to finding a cure for Type 1 diabetes.
Last year Congress appropriated $240 million for diabetes research, and the
panel participants said they were there to remind politicians that the need has
not diminished. The disease afflicts 16 million Americans and strikes about 35
children each day. Astronaut James Lovell, commander of the aborted Apollo 13
mission, also testified about his adult son's struggle with juvenile diabetes.
"Diabetes accounts for $105 billion in health care costs and 25 percent of
Medicare expenditures," he said. "Diabetes research is a worthwhile
investment."
Type 1 diabetes is characterized by the pancreas' inability to make sufficient
insulin, a hormone that metabolizes carbohydrates and regulates blood sugar
levels. Without controlled levels of insulin, blood sugar can drop too low,
sending a person into a coma. Sustained elevated blood sugars can lead to damage
of major organs such as the kidney and heart. The disease also puts people at
risk for blindness and amputations, resulting from wounds on extremities that
might not heal. Doctors say the disease shortens a Type 1 diabetic's life by
about 15 years.
Actress Mary Tyler Moore tearfully recounted the death of a friend's 31-year-old
daughter who died on an airplane while en route to a hospital for a kidney
transplant. The young woman died in her mother's arms, Moore said, at 30,000
feet. Moore spoke of two possible sources of insulin-producing islet cells --
cadaver pancreases and stem cells. But only about 2,000 cadaver pancreases are
available each year, Moore said, while through embryonic stem cell research,
"an inexhaustible supply of islet cells could be created," because
stem cells can be coaxed into maturing into any type of cell. Moore encouraged
the senators to respect the wishes of young couples who might want to donate
unused fertilized eggs, which she said would otherwise be destroyed.
Actors Kevin Kline and Jonathan Lipnicki testified about the experiences of
young friends who have the disease and how it affects their lives and daily
routines. Kline recounted the story of a thirteen-year-old friend who must prick
her fingers several times during the day to draw blood samples to test sugar
levels. Lipnicki, who appeared in the movie Jerry Maguire, said his friend,
Tessa Wick, had endured 4,563 pricks and 2,738 insulin shots since her diagnosis
two years ago.
"It's not fun," Lipnicki said. "They don't have
the same chances to live long, healthy lives. Sometimes when I'm with my friend,
I forget that she has juvenile diabetes. She, and all the kids that have
diabetes, are the real heroes. Let's find a cure!"